Thank you all so much for your prayers and thoughts. So many phenomenal suggestions keep coming in. Please, the more the better!

Good news - I called Dr Code today and left a message. A few hours later, I received a call from a nurse who has set up a meeting with Dr Code, a resident doctor, herself, my dad, my mom and I. Finally - the appointment we've been waiting for! I'll update the blog as soon as I get back from the meeting.