Monday, July 27, 2009

Banana man

ALRIGHT - so I've got a lot to catch you all up on.

Last post was 'The Puss'.... The civic thought dad had an infection. WELL - Turns out, they had it completely wrong.

Remember that day operation where they tried to put a stint into his bile duct? But they couldn't find any blockages? Toronto wanted a summary of the doctors report from that operation. But Ottawa wouldn't send it (or was taking too long). So, they demanded that my dad come down to Toronto - especially with this potential 'Puss' issue.


That pick to the right is how yellow my dad was before he left for Toronto.  BTW - Look how insane my dad's scar looks!!!!  You can bare see it.  My scar is still in full force.

Anyhow, dad got to Toronto and Toronto decided to do all the tests and operations over again because they don't trust the Civic.

It took some digging, but they found a serious blockage in my dad's bile ducts. They installed a stint and dad feels AMAAAAZING!

Moral of the story - The Ottawa Civic Hospital needs a serious punch in the face and balls. Seriously - the Civic has ONLY BEEN A THORN IN OUR SIDE. The Civic's saving grace are their incredible nurses (1 in 3). They are the diamond in the rough.

Saturday, July 25, 2009

The Puss

Dad had really high blood pressure yesterday morning. He called Tele-Health and told a nurse about it. Their response was, 'If your temperature spikes, go to the ER immediately.'

A few hours later my dad's temperature spiked, so they headed off to the ER. He was there all evening, all morning and he's been there all day today. They've now moved him to the third floor temporarily.

After a bunch of tests, they found what they think has been causing my dad's issues... a abscess on my dad's liver. Its like a giant sack of puss... like a big pimple.

They immediately put him on IV anti-biotic. They've informed Toronto. He will have to go to Toronto for further care. Not sure when... we're waiting to hear back from Toronto.

Despite this - my dad is in GREAT spirits. He physically feels fine and his mind/spirit are in a great place. It sucks that there's another complication... but its so good to hear my dad being positive about it.

I'll keep you posted.

Thursday, July 23, 2009

Good & Bad News!

Dad had is day operation yesterday and he's well.

They got the wire in... got to the bile ducts and... no problems. So dad didn't have to have any stints installed. They bailed on the operation and told him they'd report back to Toronto.

So, obviously its both good and bad news that dad's bile ducts are ok. It just means that the liver enzyme issues are coming from somewhere else. The elephant in the room is his Hep-C. If it his Hep-C... his options are limited. Chemo - or new transplant. Actually, I'm not sure they'd even do another transplant if his Hep-C is this aggressive.

Anyhow - I'll keep you all posted.

Monday, July 20, 2009

Day Surgery

Hey all - Dad's doing fantastic.

He picked me up on Saturday for breakfast - just the boys. It was good. Actually - its the first time my dad and I have hung out since the surgery - just him and I. He was totally blues'd out - Harley Davidson hat, crazy sun glasses, jacket... and Stevie Ray Vaughan cranked. And I mean CRANKED. I think its hilarious. I'm so happy for him.

While dad is doing a ton better, he's still got two minor issues looming. His potassium levels are REALLY high. That's dangerous because your heart could stop beating. Not much my dad can do about that other than not eating bananas and drinking lots of water.

Also - some liver enzyme is totally out of whack. TOTALLY. Apparently there's a problem with his bile ducts. They are shrinking.

Your bile ducts are these big veiny things that leave flow bile to and from your liver. When a living donor is used, because of the anatomy of the liver (they're only using 70% of a liver), the procedure isn't as flawless as a cadaver liver (whole liver from a diseased patient). And this is one of the common issues... some of the bile ducts can shrink.

Easy fix though. Similar to an angioplasty, my dad will have a long wire shoved down his throat (I believe) all the way to his liver. Its actually twice as long as the angioplasty wire. Once the wire reaches the bile ducts, they'll install stints that will expand the ducts. Its day surgery. Pray that the procedure goes without a hitch.

The doctors seem to think that this procedure will help my dad recover even quicker.

Also - my dad's Hep C is still lurking. Its already started to act quickly on his new liver. He's not in any danger yet... but its possible that in the next few months, he may have to go on a heavy CHEMO treatment. My dad really really doesn't want to. Its pretty hardcore - he'll be very sick for many months again... and that's the last thing he wants right now. Pray that the Hep-C will disappear and be a non-issue.

Anyhow - there's an update. I should post pictures so y'all can see how he's doing. He's getting fat again!!! So awesome! He doesn't use his cane as much anymore. All very positive.

Wednesday, June 24, 2009

Doctors give the 'all clear'!

Having my dad home has been amazing! Its been so good to stop by my parents house and see them chillin' at home.

However, there's been a lerking stress. Doctors have been concerned about my dad's bile ducts and his Kidney's. Furthermore, after a attending Kory & Steph Gorsky's wedding last week, dad took ill... had a tough time getting out of bed. So, as happy as we are to have dad home and as well as he is doing, his condition seems to still be fragile.

My dad was booked for an appointment in Toronto this week to examine both his Kidney's and his Bile Ducts. He was in an MRI machine for over 1hr 20min. If any of you have been in an MRI machine before, you know that spending more than 20min in one is unthinkable.

Dad just called from Toronto with the results from all his tests and... THE REPORT IS GREAT!

No kidney issues! There was a weird shadow on a previous ultrasound that led the doctors to think he may have a growth... but that has been ruled out officially!

No urgent bile duct issues! The doctors are booking him for some precautionary test, but all of them will be in Ottawa!

His next appointment in Toronto is... (wait for it)... January 2010!

The ONLY pressing issue is that dad's CDif (some digestive bacterial infection) has resurfaced. But he has been prescribed some insane anti-biotics ($900 for a two week refill... insane!). Doctors say he'll be 100% in a week or so.

So - you could say the story is just about over! What a journey... I can't believe that dad is home... and for good!

Monday, June 8, 2009

Perma-Home!

FINALLY! Dad's perma home! He got back to Ottawa Friday, May 29th.

So good to see him home finally! We had a family dinner on June 5th. Just as we were about to say grace, I looked across the table at my healthy dad... it almost brought me to tears.

That moment... even if it was all just for that moment... it was all worth it. My dad happy, healthy, energetic... back to himself for the first time in 14 months.

I said grace... it got intense, to say the least. I praised and thanked God for healing dad and seeing him through... seeing the family through!

WOOOW! What an awesome feeling it is to be on the other side... dad's well, I'm well, the family is well.

Dad still needs your prayers - there are a few minor complications that the doctors are still reviewing. Dad has a full abdominal MRI at the end of the month as well as a bunch of other tests. Issues include potassium levels, a 'shadow' on his last kidney x-ray, and some liver enzyme counts. Dad's overall health is good... he's not in a life or death situation anymore. But there are still somethings to work through.

Sorry for the lack of updates on the blog... such is life.

Sunday, May 17, 2009

Dad's Home

Dad got home this past Friday afternoon. So good to see him. He can walk (with a walker) and walk up stairs. He's doing so well!

"I can't believe how hard rehab is," said dad. "And just because I'm home, I think I'm all better... no way! I almost fell twice today trying to get up the stairs like I used to."

It seems like its been such a long journey... but its only really been 6 months since the surgery. In the grand scheme of life, its not that long at all.

One thing dad was dying to do when he got home was listen to his blues music and eat ice cream. I offered to take him out for some Dairy Queen. He jumped at the opportunity. We hopped in the car and dad instantly went for the CD player and threw on his blues. OH MY! My ears nearly bled. I'm sure you could hear us coming from a few blocks away. Dad was so happy! Singin' along, totally out of key... but he was in his happy place.

At this point in dad's recovery, his mind and his spirit have finally been restored. His body still needs a lot of work. My dad has over 20 bottles of pills. 20! That's insane. But he should be down to half that in a few months.

Dad's goal is to be home permanently by mid-June. Very exciting.

Thanks God for strengthening my dad and our family. Sometimes your plan is hard to see... but I pray this situation will remain forever in my life as evidence of your faithfulness to us.

Saturday, May 9, 2009

The SUN!

Everybody make sure they grab a copy of Sunday's Ottawa SUN! They're running a story on dad and the family journey! I think page 3... but I'm not sure.

Dad's doing well. He just keeps getting better. No set backs lately.

Its Dad's Birthday on May 11th. Everyone post a birthday message for him on the blog and my Aunt Patti will make sure he gets your message. He's turning 55. Dad has a song he's been singing lately.

'55... 55... 55 and still alive!'

Tuesday, April 28, 2009

One step back, two steps forward

Its been a while since I've spoken with my dad. I kinda feel bad about it... but life's been so busy that I actually didn't notice that my dad hadn't called in a while. And I didn't even wonder why... I just assumed everything was going really well.

Not so much. Dad took a bit of a bad turn a few days ago. Nothing major... just a minor set back. He's got a head cold and his recurring case of 'the runs' has returned. Just like previous times he's been sick, he gets weak and unmotivated. However, he's doing a better job this time controlling his response. He's still doing this therapy and he can still walk on his own.

He called today and he sounds fantastic - he honestly did. He laughed a lot which was sooo refreshing to hear. MAN - I can't wait 'till that man is better and back home!

Mom is doing well - but as you can all imagine, its been a long road. Friggin' awesome woman, that mom of mine. She'll be home on Thursday to take care of some business stuff. Not sure what her plans are. She might be home for a few days... maybe even a week or two.

Keep dad in your prayers!

Monday, April 20, 2009

Chels Visit

Chelsea was visiting a friend in Toronto this past weekend. Just before she left for home, she decided to stop by and visit dad.

Apparently he's still doing great! His legs got even thinner, somehow. When Chel first peaked in his room, all she could see were is legs. She said to herself, I must have the wrong room... that looks like old lady's legs. Nope - they were dad's.

He's consistently doing his rehab every day and he continues to make great progress. 10 days ago, he couldn't get out of bed by himself. When Chel was with him, he was so excited to show her that he could get out of bed, stand up, and get into his wheel chair! Phenomenal!

Hopefully only 4-5 more weeks of St John's Rehab before my dad can come home and continue rehab in Ottawa.

~

I saw Bryan Fukumoto on the weekend at a hockey tournament. He's doing very well! Up and about. As is his uncle (donor).